floit63: (25)
[personal profile] floit63 posting in [community profile] ftm
I was diagnosed with epilepsy about 4 years ago. Up until the past six months I'd only had absence seizures (basically looks like I'm spacing out) and the occasional febrile seizure, but recently I've been having more and more grand mal seizures (the kind most people are familiar with). I've noticed that these tend to come on when I forget to do my T shot for more than about a week. Has anyone else experienced this correlation?

It's not an automatic thing, I won't just have one because my shot was due last Tuesday. However, I have noticed that the times when I've been most regular about my shot have also been the times when I've not had a single grand mal while the times when I have had them have all been during a missed shot week. I realise the simple way to test this is to just do the damned shot, but I have pretty bad needle anxiety so quite a bit of the time I'll sit down, prick myself, and chicken out before I've even hit subcutaneous tissue.

Date: 2009-05-10 07:07 am (UTC)
bee: (Lighthouse)
From: [personal profile] bee
Do you know anyone who would help by being able to give you the shot? Usually doctors are willing to teach someone you bring with you, on how to give you a shot properly.

I wouldn't be able to give myself shots either--you're really brave. But if you can ask a friend for help, then I would try doing that first.

Date: 2009-05-10 04:19 pm (UTC)
bee: (Default)
From: [personal profile] bee
Still, it would help to find someone to give you the shot, just as a fallback. I presume you set an alarm about it? If not, perhaps you should? Just a little watch alarm. That certainly helped when I was on the pill a few years ago.

Date: 2009-05-10 05:58 pm (UTC)
bee: (Default)
From: [personal profile] bee
Ah, I hear that. Is there any time of day where you're always free to do it, or is your schedule just too hectic? I'm not sure if you can get syringes for this, but I know my mother uses a spring-loaded injector for her imitrex--maybe you could investigate that possibility?


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